SCLERODERMIA: VUOI AIUTARE UNA RICERCA SUI GRUPPI DI SUPPORTO?

Per contribuire a fornire importanti informazioni riguardo i motivi per cui le persone affette da Sclerodermia decidono di partecipare o meno ai gruppi di supporto ed implementare così la qualità dei gruppi stessi, Vi invitiamo a completare il breve questionario, che occuperà non più di 15 minuti.
Possono partecipare attivamente all’indagine: persone affette da Sclerodermia, ricercatori internazionali, membri di Associazioni.

Le risposte raccolte, fornite in modo assolutamente anonimo, saranno utilizzate per consentire alle persone sclerodermiche di accedere a gruppi di supporto in modo sempre più facilitato.

Ecco il link per compilare il questionario: https://survey.co1.qualtrics.com/SE/?SID=SV_cAdjVJSxLa0PHdH

 

Scleroderma Support Group Survey

Do you have scleroderma? Are you interested in helping advance research on scleroderma support groups? If so, please lend a hand by completing this short 10-15 minute survey!

Our team, which is comprised of international researchers; people with scleroderma; and leaders from the Federation of European Scleroderma Associations, the Scleroderma Foundation of the United States, and the Scleroderma Society of Canada are working together to learn more about the experiences of scleroderma support group facilitators, scleroderma support group members, and people who choose not to attend scleroderma support groups.
Your anonymous answers to the survey questions will provide a greater understanding of the important training and support needs of group leaders, as well as the reasons why people with scleroderma either attend or do not attend support groups. The results from this survey will be used to increase the accessibility of scleroderma support groups and to structure these groups in a way that increases their ability to effectively meet the needs of members.
If you have a few minutes to spare and are able to help with this exciting research project, please click on the following link, which will take you directly to the survey:

https://survey.co1.qualtrics.com/SE/?SID=SV_cAdjVJSxLa0PHdH

If you have any additional questions or concerns about the survey, please contact any

member of our research team listed below:
STEPHANIE GUMUCHIAN
MSc. Psychiatry Student, McGill University
Telephone: (514) 340-8222 ext. 6813; Email: sgumuchian@gmail.com

OR
VANESSA DELISLE
PhD. Counselling Psychology Student, McGill University
Telephone: (514) 340-8222 ext. 6812; Email: vanessa.delisle@mail.mcgill.ca

OR
MIA PEPIN
BSc. Psychology Student, Université de Montréal
Telephone: (514) 340-8222 ext. 8578; Email: mia.r.pepin@gmail.com